Medicaid Pediatric Assessment Tool: Help or harm?

Medicaid Pediatric Assessment Tool: Help or harm?

Colorado Medicaid recently began using a new questionnaire, the Pediatric Assessment Tool, to determine a child’s level of need for skilled nursing care. Many families are reporting that their home health hours have been reduced as a result, because their child’s needs don’t match what the tool measures. If you’ve been affected, we’d like to hear your story. Continue reading »

The importance of advocacy: Call for stories

The importance of advocacy: Call for stories

Family Voices National is partnering with Genetic Alliance and Parent to Parent USA (P2P) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others. We are developing an online toolkit and would like to include a personal story that demonstrates the importance of advocacy in each of several topic areas. Continue reading »

Summer’s coming!

Summer’s coming!

Summer is only two months away, in spite of the foot of snow that fell over northern Colorado yesterday. If you’re looking for camps, playgrounds, trails, or sports for children with special needs, we have information for you! Continue reading »

Autism Awareness Month

Autism Awareness Month

April is Autism Awareness Month, and with the recent and rapid increase in the rate of autism diagnosis (as many as 1 in 50 children are affected by the disorder), we want to highlight some resources available for families, professionals, and community members. Continue reading »

Counting what counts

Counting what counts

In our work to improve access to and quality of health care for children and youth with special health care needs and their families, we spend a lot of time telling stories about what families face. But it’s important to know what the numbers beyond those stories can tell us, too. Continue reading »

Tell your story

Tell your story

At Family Voices Colorado, we’re always eager to hear the stories of the families we serve, both the challenges you face and the resources that help you overcome those obstacles. Learn about an opportunity for mothers in particular to share their stories for publication. Continue reading »