Tag Archives: advocacy

Bill to Help Individuals with Disabilities Gain Independence

Last week, Senator Chuck Grassley (R-IA), together with Senator Ron Wyden (D-OR) and Senator Bob Casey (D-PA), introduced the “Transition to Independence Act” (S. 1604), which as described in Senator Grassley’s press release, “would create a five-year, 10-state Medicaid demonstration program to give bonuses to states for helping individuals with disabilities achieve the goals of working and living in the community.  It would encourage coordination among those who provide health services, housing, education and workforce training, transportation and other support to people with disabilities to maximize the outcome for the individual.”  The National Council on Disability provided technical assistance in developing the bill, which has been endorsed by a number of disability organizations. A technical summary of the bill is available here. The bill text is availablehere.

Meeting on How Parents Advocate for Children with Special Needs

Resilience, Coffee, and Community: How Parents Advocate for Children with Special Needs

Wednesday, June 17, 3:00 pm ET

Sponsored by Family Voices of California

In this interactive lecture and discussion, Sarah Taylor, MSW, PhD, will share insights from her personal journey in advocating for her 8-year-old super-kid with Fragile X syndrome, as well as the experiences of over 300 parents who participated in a study about how they advocate for their own children and others at personal, organizational, community, and policy levels. To register, click here. After registering, you will receive a confirmation email containing information about joining the webinar.