Tag Archives: advocacy

Support SB 14-118, Protections for Individuals with Disabilities

Where: Capitol Building, 3rd floor, room SCR 352

When:  Monday, April 21, 2014, 1:30 pm

What it is:  An attempt to align the Colorado Civil Rights Act with the Americans with Disabilities Act. This legislation would make the Disabilities portion of the Colorado Civil Rights Act enforceable.

  •  It will increase statutory damages from $50-500  to $3,500.
  •  Adjustment of a provision that allows for attorney fees in cases of discrimination against a service animal, but not a person.
  •  Continues current protections for service animals in training.

 

The presence of families/children at this hearing is strongly encouraged – this is the greatest legislative priority for the disability community this year and will significantly affect people for many years to come!

Staff Spotlight: Suzette Elledge

Suzette Elledge is the Program Manager for Health Coverage, formerly responsible for coordinating the Medical Home Certification program, now moving into a role overseeing Family Voices’ involvement with the new health insurance marketplace, Connect for Health Colorado. Although her employment with Family Voices Colorado (FVC) began in 2009, she first got involved with us some 12 years ago, when her two sons, Jacob and Joshua, were diagnosed with autism.

Suzette with her two sons
Suzette with her two sons

Suzette explains, “Their diagnosis came only months apart and Joshua was receiving Early Intervention and Jacob was receiving services through a preschool program. My service coordinator shared resources with me and I called Family Voices to get help understanding everything that was happening and how to stay on track with their services.”

But prior to that diagnosis, Suzette had already accrued 17 years’ experience working in disability and family support service systems. She began working with families of children with special health care needs at the ARC of Sacramento (California) in 1984; studied Occupational Therapy and Psychology at San Jose State University; worked with Family Support Services of the Bay area in Family Preservation, Respite and Family Services; and taught at the Morgan Center in California.

After receiving her sons’ diagnosis, she says, she “decided not to continue to work in direct services since I was encompassed with them at home, but wanted to continue to serve families, so I worked as an Early Intervention Service Coordinator at Developmental Pathways.” She was working for CHP+ outreach and enrollment in 2007 when FVC approached her about joining the Board, and two years later, when a position opened up in the Family Support 360 program, she jumped at the chance to join the staff.

Susana Herrera and Suzette Elledge at Hearts on Fire 2012
Susana Herrera and Suzette Elledge at Hearts on Fire 2012

Those who know her well have experienced Suzette’s bubbly personality, her love of Tinkerbell and glitter; and her unabashed enthusiasm for her work:

“The absolute best part of my work is the people. From those I work with to those who I get a chance to collaborate with in the community, and especially the families. I have worked with probably thousands of families over the past almost 30 years and I continue to be inspired and humbled by the dedication and strength that I witness. When a family receives a diagnosis, whatever it is, it seems that something incredible happens: a strength, devotion and resilience that drives a determination that is both powerful and tender. I learn lessons every day from the experiences that I share with families.”

This summer, Suzette is working with Ileana Perez to prepare for FVC’s new role as an Assistance Site in Colorado’s Connect for Health Assistance Network. Suzette sees this work as aligned with the organization’s orientation toward staying on the forefront of new developments in the health care landscape so as to better assist consumers, especially families of children with special health care needs, who are often more frequent and more intensive users of systems than those with typical children and adults.

The work itself involves providing in-person assistance to customers of the new health insurance marketplace starting in October 2013. As part of the Connect for Health Assistance Network, Family Voices will serve clients across the state, helping individuals and families consider health plan options, apply for insurance affordability programs, and sign up for health coverage. Although anyone can call any assistance site, the focus for FVC’s outreach and support will be families of children with special health care needs.

Suzette is currently working on a degree in nursing from Colorado Christian University, and looks forward to serving families and individuals in a new way once her program is complete. In the meantime, she is a strong advocate not only for the families she serves, but for the organization as well:

“The most exciting thing Family Voices has to offer families is a team of people with an incredible amount of knowledge and understanding of the world of disability and what it takes to negotiate that successfully. We also work diligently at building and maintaining strong community partnerships so that we can have beneficial relationships with other entities and the work for families can be strengthened. The team understands the intricate rules and languages of systems and works with families to strengthen their knowledge and confidence. Families can know that they are not alone on this journey and I’m exceptionally proud to be a part of an organization that can say that.”

 

Next article from July 2013 newsletter: Bridging Hospital and Community: Family Navigator program expands.