Tag Archives: funding

NDNRC Announces Locations Of 11 Community Outreach Collaboratives (COCS)

logoWe are excited here at Family Voices to learn that we have been selected as one of the Community Outreach Collaboratives that will be funded through the National Disability Navigator Resource Collaborative Project!

NDNRC Announces Locations of 11 Community Outreach Collaboratives (COCs)

The American Association on Health and Disability (AAHD) is pleased to announce that it will be funding eleven Community Outreach Collaboratives (COCs) through the National Disability Navigator Resource Collaborative (NDNRC) project.  The COCs will increase collaborations in the community, dissemination and outreach efforts and enrollment of people with disabilities in the ACA. The COCs will have two primary tasks: 1) build cross-disability collaborations with other disability organizations; and 2) have the cross-disability collaboration work as a dissemination and outreach resource with their local and/or state navigators and assisters.

The COCs represent organizations with geographic diversity as well as varying constituencies within the disability community. AAHD is proud to say that the 11 COCs represent 11 different states and are located in 9 of the 10 HHS regions. The 11 COCs are (by HHS regions) as follows:

  • Region #1 – Rhode Island Parent Information Network, Cranston, RI
  • Region #2 – Center for Independence of the Disabled, NY, New York, NY
  • Region #3 – NAMI (National Alliance on Mental Illness) Southwest Pennsylvania, Pittsburgh, PA
  • Region #4 – Lakeshore Foundation, Birmingham, AL
  • Region #5 – Family Voices Indiana, Indianapolis, IN
  • Region #5 – Wayne State University, Detroit, MI
  • Region #6 – University of New Mexico Center for Development and Disability, Albuquerque, NM
  • Region #7 – NAMI Kansas, Topeka, KS
  • Region #8 – Family Voices Colorado, Centennial, CO
  • Region #8 – North Dakota Center for Persons with Disabilities at Minot State University in partnership with Family Voices of North Dakota, Minot, ND
  • Region #10 – PAVE Family to Family Health Information Center, Tacoma, WA

We at the NDNRC congratulate these fine organizations and look forward to working with them through the coming open enrollment and the remainder of 2015 as we endeavor to increase enrollment of people with disabilities in the health insurance marketplaces. The COC initiative is part of the year 2 NDNRC grant which is made possible by the funding from the Robert Wood Johnson Foundation.

The NDNRC website can be found at: www.nationaldisabilitynavigator.org.

Juanita’s Family Story: Getting Around the Obstacles

WNR 2013 Dominguez family-horiz
Juanita and her daughters at the October 2013 Walk ‘n’ Roll

Juanita Dominguez is a Spanish-speaking mom to three daughters, ranging in age from 3 to 17. Erika, her middle child, has spina bifida with secondary hydrocephalus. The main expression of this condition for Erika is that she cannot feel her legs and cannot walk, so she uses a wheelchair to get around.

At age 9, Erika is beginning to get a bit heavy for her mother to pick up on a regular basis, which meant that getting in and out of their family van was becoming increasingly difficult. Without a wheelchair ramp, Juanita had to lift Erika from her chair into the van, and back out again, any time they wanted to go somewhere. So they began asking the health care providers and others in the community how they might be able to get a ramp installed, allowing Erika to roll right up and into the van in her chair.

The first referral to a foundation that considers funding requests like this resulted in a dead end: to qualify, applicants need a driver’s license and a social security card, which was not possible for the Dominguez family. Fortunately, a staff member in the Special Care Clinic at Children’s Hospital Colorado referred Juanita to Family Voices Colorado, and the family got connected with Ileana Perez, one of our bilingual Family Navigators.

Erika uses her new wheelchair ramp
Erika uses her new wheelchair ramp

Ileana was able to direct the Dominguez family to Variety Colorado, a children’s charity that seeks “to provide life-saving and life-enriching assistance to children challenged by physical and mental disabilities, poverty, abuse and neglect.” Ileana helped Juanita apply for the funding of a wheelchair ramp for their van, and within a relatively short period of time, Variety Colorado approved the application, granting the family $1900 in total, plus a $200 gift card.

Juanita shared that her experience with Ileana and Family Voices was “Very fast, very friendly. There were no obstacles in getting the help we needed. I am so grateful.”

Web Ad CGD VertRectangleLinkedWhile grants fund much of Family Voices Colorado’s work, we increasingly rely on individual donations to help us fulfill our mission to increase access to and quality of health care for children and youth with special health care needs.  Please consider supporting Family Voices on Colorado Gives Day, Tuesday, December 10, to help us continue making Colorado a better place for all families!

Health Care Law Updates

If you’ve been listening to the federal budget discussion and the “sequestration” that is now in effect, applying spending cuts across the board, you may be wondering what that means for health care. The good news is that certain important programs, like Medicaid, Social Security, and SNAP (food stamps) are exempt from the cuts. The not-so-good news is that Medicare provider payments will be cut 2% on an annualized basis. Of course, this could all change if Congress can agree on a way forward for federal deficit reduction.

Federal grant funds, like the Family-to-Family Health Information Center Grant that supports some of our work at Family Voices Colorado, will see some cuts, but we are still waiting to find out exactly how those will be applied. At this point we are not planning to reduce staffing or services, but please contact us if you have any questions.

The Patient Protection and Affordable Care Act, also known as health care reform, Obamacare, or ACA, will be rolled out fully as of January 1, 2014. The law is wide-reaching in its implications for health insurance companies and for individual and family consumers. Here are a few resources that might be helpful as you or people you know are trying to understand the big picture more fully:

HealthCare.Gov: Learn about health insurance basics, sign up for email or text message updates, read about the coming Health Insurance Marketplaces, and find out how the new federal law might affect you. http://www.healthcare.gov/

Connect for Health Colorado: Formerly called the Colorado Health Benefit Exchange, this is our state’s Health Insurance Marketplace. Information and resources are available now, but the insurance plan research and application functions will go live this fall. http://www.getcoveredco.org/

The Health Care Law 101.  National Family Voices is offering a presentation on the main provisions in the Affordable Care Act and how to access care in your community in English on March 7 at 1pm EST/11am MST, and in Spanish on March 19 at 3pm EDT/1pm MDT. (Note that we switch to Daylight Savings Time this weekend, March 10, 2013.)

Frequently Asked Questions about ACA Implementation.  CMS has posted a set of frequently asked questions about Medicaid and CHIP (State Child Health Insurance Program – CHP+ in Colorado) issues related to the ACA, including changes in Medicaid eligibility (under the “Eligibility Policy” category.)