Since 2011, with the support of The Colorado Health Foundation, Family Voices Colorado has been working on a pilot project to develop consistent tools and processes that support youth and young adults with special health care needs in the transition from pediatric to adult care. Our first tool is a Guide to Transition, now available.
Family Voices National is partnering with Genetic Alliance and Parent to Parent USA (P2P) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others. We are developing an online toolkit and would like to include a personal story that demonstrates the importance of advocacy in each of several topic areas.
If you have questions about how “sequestration” affects health care programs, or would like to know more about the implementation of the Affordable Care Act in Colorado, check out these updates and resources.
Help improve family-centered care by providing feedback on the REVISED Family Voices Family-Centered Care Assessment for Families (FCCA) questionnaire. This questionnaire allows families to evaluate the quality of the family-centered care they receive from their health care providers.
El Instituto de Entrenamiento para Liderazgo Familiar (FLTI) es un programa cívico diseñado para desarrollar los líderes familiares. Además, es una asociación pública y privada, ofreciendo herramientas a los individuos hacia el compromiso y involucramiento cívico.
Three in five youth and children with special health care needs do not receive the services necessary to make appropriate transitions to adult health care, work, and independence. Contact our Health Care Transitions Navigator or join a quarterly webinar to learn more about the importance and impact of smooth transitions from pediatric to adult health care.
Excerpts from National Family Voices press release; read the full story here. This 164-page book was developed for families by families, in partnership with the American Academy of Pediatrics (AAP) and other professionals, and based on the AAP’s Bright Futures: Guidelines for the Health Supervision of Infants, Children, and Adolescents (3rd ed.). Bright Futures was …
Our new site here will feature frequent updates on community resources; training opportunities; other local, state, or national events; developments in state or national legislation and other policy issues; and other resources that we believe may be helpful to families of children with special needs and the professionals who work with them. If you have …