Since 2011, with the support of The Colorado Health Foundation, Family Voices Colorado has been working on a pilot project to develop consistent tools and processes that support youth and young adults with special health care needs in the transition from pediatric to adult care. Our first tool is a Guide to Transition, now available.
In our work to improve access to and quality of health care for children and youth with special health care needs and their families, we spend a lot of time telling stories about what families face. But it’s important to know what the numbers beyond those stories can tell us, too.
Read the HHS letter to providers about HIPAA in relation to threats to safety; sign up for a webinar from Got Transition on engaging youth in their health care.
Advocacy groups share feedback from consumers about what features are important in the new Colorado Health Benefit Exchange; the Colorado Consumer Health Initiative is looking for real people’s stories of health insurance challenges; and upcoming events for families and professionals.
Three in five youth and children with special health care needs do not receive the services necessary to make appropriate transitions to adult health care, work, and independence. Contact our Health Care Transitions Navigator or join a quarterly webinar to learn more about the importance and impact of smooth transitions from pediatric to adult health care.