Excerpts from National Family Voices press release; read the full story here.
This 164-page book was developed for families by families, in partnership with the American Academy of Pediatrics (AAP) and other professionals, and based on the AAP’s Bright Futures: Guidelines for the Health Supervision of Infants, Children, and Adolescents (3rd ed.). Bright Futures was recognized as the gold standard of pediatric care in the Affordable Care Act.
“The Bright Futures Family Pocket Guide puts highly relevant health promotion material in an easy to use, accessible format. The guide facilitates communication between families and providers and strengthens parent-provider relationships.”
Judith S Palfrey, MD
Mother of three children
Co-author, Bright Futures Editions 1 and 2
Former President, American Academy of Pediatrics
Former Executive Director of Michelle Obama’s “Let’s Move” Initiative
National Family Voices Executive Director Lynn Pedraza commented:
“Our work is all about families helping other families and professionals get the most useful information to best serve children with special health care needs and disabilities, and all children. The Pocket Guide is a great support in that effort: any family can use it to help their children be healthy and well at all stages of development. So, we hope to get this little book into the hands of as many families as possible to promote health and wellness for children everywhere. We have plans for translation, so stay tuned!”
Developed for families by families, the Pocket Guide provides families with:
- Information and encouragement for the roles families play every day in the health and well-being of their children
- Information about the importance of well child visits for all children, including children and youth with special health care needs
- Encouragement to speak up to take active roles in their children’s care
- Encouragement to form partnerships with other families and with professionals to improve policies, care, services, and support for all children and families
- An overall framework for children’s good health and insight into all those who contribute to it
- Current, comprehensive, succinct information about child development
- Links to resources and further sources of information for children’s good health
Health care professionals as well as parents are finding the Pocket Guide to be a valuable reference:
“I believe this is the standard for how we need to be promoting health and wellness, as health professionals and as families. The Pocket Guide makes a family’s questions the #1 priority at each visit with a physician – and this is such a helpful approach for both the physician and the family. And it has the kind of resources at the back that physicians and families both tell me they need, very comprehensive, and right at their fingertips. All in all, it is fabulous little book with fantastic information.”
Dennis Kuo, MD
Father of two children, including one with juvenile arthritis
Pediatrician at Arkansas Children’s Hospital and Faculty at the University of Arkansas for Medical Sciences
Steering Committee Member, Arkansas Disability Coalition
For more information and to order copies of the Pocket Guide, go to http://bit.ly/BrightFuturesFamilyPocketGuideorders, or call Family Voices Colorado at 800-881-8272 and we will order copies for you.
Family Voices Colorado believes that parents of children with special health care needs should not be alone when they face the scary and confusing task of securing care for their children. Every day we give parents the information and strength they need to navigate complex health care systems in order to get things like wheelchairs, oxygen, or surgery for their children. With our help, parents are able to be the heroes their children are counting on.