The latest findings from the Data Resource Center for Child & Adolescent Health identify that 3 in 5 youth and children with special health care needs did not receive the services necessary to make appropriate transitions to adult health care, work, and independence. This is a critical juncture and missed opportunity for preventing the further onset of adult chronic conditions.
Since spring 2011, Family Voices Colorado has been working with the national Got Transition? initiative, Children’s Hospital Colorado, and several other local health care providers to implement a pilot project exploring the resources and supports needed for more young people with special health care needs to experience a smooth transition from pediatric to adult health care.
Our Health Care Transitions Navigator is Susan Cassell, so if you have questions about the process or would like more information – whether as a parent or family member, youth or young adult, or as a health care provider – please contact her at 800-881-8272, ext. 115, or on her direct line at 303-577-0331. You may also want to explore some of the resources at Got Transition?, like their quarterly webinars and monthly radio episodes:
Got Transition? Quarterly Webinar
Wednesday, November 7, 12 – 1pm MST (2 – 3pm EST)
“I am more than a diagnosis!” – The Impact of Personal Identity on Health Care Transitions for Young Adults with Special Health Care Needs
In this Got Transition quarterly webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health.
A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.
Space is limited, so be sure to register in advance!
Family Voices Colorado believes that parents of children with special health care needs should not be alone when they face the scary and confusing task of securing care for their children. Every day we give parents the information and strength they need to navigate complex health care systems in order to get things like wheelchairs, oxygen, or surgery for their children. With our help, parents are able to be the heroes their children are counting on.