All posts by familyvoicesco

Family Voices Colorado believes that parents of children with special health care needs should not be alone when they face the scary and confusing task of securing care for their children. Every day we give parents the information and strength they need to navigate complex health care systems in order to get things like wheelchairs, oxygen, or surgery for their children. With our help, parents are able to be the heroes their children are counting on.

Young adults discuss identity & health care transitions

The latest findings from the Data Resource Center for Child & Adolescent Health identify that 3 in 5 youth and children with special health care needs did not receive the services necessary to make appropriate transitions to adult health care, work, and independence. This is a critical juncture and  missed opportunity for preventing the further onset of adult chronic conditions.

Since spring 2011, Family Voices Colorado has been working with the national Got Transition? initiative, Children’s Hospital Colorado, and several other local health care providers to implement a pilot project exploring the resources and supports needed for more young people with special health care needs to experience a smooth transition from pediatric to adult health care.

Our Health Care Transitions Navigator is Susan Cassell, so if you have questions about the process or would like more information – whether as a parent or family member, youth or young adult, or as a health care provider – please contact her at 800-881-8272, ext. 115, or on her direct line at 303-577-0331. You may also want to explore some of the resources at Got Transition?, like their quarterly webinars and monthly radio episodes:

Got Transition? Quarterly Webinar
Wednesday, November 7, 12 – 1pm MST (2 – 3pm EST)
“I am more than a diagnosis!” – The Impact of Personal Identity on Health Care Transitions for Young Adults with Special Health Care Needs

In this Got Transition quarterly webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health.

A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.

Space is limited, so be sure to register in advance!

Seeking caregivers for focus groups

Family Voices Colorado frequently partners with public agencies such as the Colorado Department of Health Care Policy and Financing (HCPF) on efforts to improve programs and services for the families we work with. Currently, HCPF wants to expand their stakeholder engagement efforts to include additional input from those who provide care for dual eligible (Medicaid and Medicare) clients. Input from these people is critical to the successful design and implementation of the dual eligible program.

Who is a Care Provider?

For the purpose of our focus group, a care provider is defined as:
A person who helps to care for a fully dual eligible individual who is ill, has one or more disabilities, or is aged. A care giver may be a family member, a friend who volunteers assistance, or an individual who provides care-giving services for a cost.

Privacy Agreements

Due to limited internal resources, the Department has contracted with two external groups to gather this input. Corona Insights will conduct the focus groups for care providers. While these focus groups will not ask for any protected health information, business associate agreements have been executed with Corona Insights to ensure HIPAA compliance, privacy, and confidentiality. Information shared by caregivers will not be linked with any individual caregiver. Input gathered through this process will only be used to help improve the Demonstration to Integrate Care for Dual Eligible Clients.

These focus groups help HCPF to continue to incorporate the voices of those most affected by changes in the system. If you or someone you know would like to participate, please contact:

Kassidy Benson
Project/Marketing Assistant, Corona Insights
1580 Lincoln St. Suite 600, Denver, CO 80203
kassidy@coronainsights.com
(303)894-8246 main
(303) 894-9651 fax
CoronaInsights.com

Family Leadership Training Institute

Eileen Forlenza speaks at FLTI graduationThe Family Leadership Training Institute (FLTI) is a first-of-its-kind family civics program. Program graduates develop skills needed to become effective leaders in their communities. The curriculum integrates personal and child development, leadership training, civic literacy and civic participation skills, with each participant developing a final community project.

FLTI is now accepting applications for the class of 2013 at ColoradoFamilyLeadership.com (click on ‘Now Accepting Applications!‘). Applications are due November 30, 2012. Interviews will be scheduled in December 2012.

 Classes start in January 2013 in the following counties:
FLTI 2009 GraduatesAdams (monolingual Spanish only/solamente en español)
Arapahoe/Douglas
Eagle
Larimer
Mesa
Montezuma/Dolores
Denver/Aurora (near Children’s hospital)

The Colorado Family Leadership Training Institute began in Colorado in 2009, with Family Voices Colorado as a founding partner. Help us spread the news and encourage others to apply for this excellent training opportunity for parents, family members, and other community members interested in making a difference for children, youth, and families.

Who should apply? Parents, teen parents, grandparents, other family members, young adults, foster parents, community members and others who wish to improve the lives of children and families in communities.

FLTI is a proven curriculum that inspires, trains, and empowers individuals to become effective leaders and change agents on behalf of children, youth, and families. This opportunity is only offered to 25 participants per session who are screened and selected based on their availability and readiness. Consideration is also given to how their participation will enhance diversity, strength, and learning for the group as a whole. FLTI is offered free of charge! In return, you commit your time and a written community project that reflects your passion.

The 20-week FLTI curriculum is based on the premise that the family is a child’s first and most important teacher, and that family members are the best advocates for children and communities. Community leaders, including parents, youth, and family members, can be effective when they speak out on issues and inform policymakers, the media, and the community about the needs of their members.

FLTI offers stimulating educational sessions to boost leadership skills of participants in addressing areas of concern such as accessible child healthcare, the education achievement gap, neighborhood safety, and the significance of parental involvement. Together, class participants will emerge as strong leaders and advocates for all children and their families.

Fondly,

LaShay Canady
Statewide FLTI Community Support Liaison
Family Leadership Training Institute (FLTI)
888.690.3456 (toll-free)/720.224.9117 (fax)/303.719.1633 (office)
13918 E. Mississippi Ave #129, Aurora, CO 80012