Category Archives: Health Care Transitions

Resources for Health Care Providers

HIPAA Privacy Rule Does Not Prohibit Disclosure of Threats to Safety

Last month, the Department of Health & Human Services issued a letter to health care providers to ensure that they are aware of their ability under the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule to take action, consistent with their ethical standards or other legal obligations, to disclose necessary information about a patient to law enforcement, family members of the patient, or other persons, when they believe the patient presents a serious danger to himself or other people.

Webinar: How to Engage Youth in Their Health Care

The National Center for Medical Home Implementation and Got Transition, the National Health Care Transition Center, invite you to join them for a webinar, “How to Engage Youth in Their Health Care” on Wednesday, February 27th.

Note that this is the first of a four part webinar series hosted by The American Academy of Pediatrics (AAP) and its National Center for Medical Home Implementation. Learn more about  “The Medical Home in Pediatrics: The HOW TO Webinar Series.”

What are your needs as a provider?

If you are a health care provider who works with children and youth with disabilities or special health care needs, what kind of resources would be most helpful to you?  Call 303-733-3000 or email communication [at] familyvoicesco [dot] org to share your perspective.

Young adults discuss identity & health care transitions

The latest findings from the Data Resource Center for Child & Adolescent Health identify that 3 in 5 youth and children with special health care needs did not receive the services necessary to make appropriate transitions to adult health care, work, and independence. This is a critical juncture and  missed opportunity for preventing the further onset of adult chronic conditions.

Since spring 2011, Family Voices Colorado has been working with the national Got Transition? initiative, Children’s Hospital Colorado, and several other local health care providers to implement a pilot project exploring the resources and supports needed for more young people with special health care needs to experience a smooth transition from pediatric to adult health care.

Our Health Care Transitions Navigator is Susan Cassell, so if you have questions about the process or would like more information – whether as a parent or family member, youth or young adult, or as a health care provider – please contact her at 800-881-8272, ext. 115, or on her direct line at 303-577-0331. You may also want to explore some of the resources at Got Transition?, like their quarterly webinars and monthly radio episodes:

Got Transition? Quarterly Webinar
Wednesday, November 7, 12 – 1pm MST (2 – 3pm EST)
“I am more than a diagnosis!” – The Impact of Personal Identity on Health Care Transitions for Young Adults with Special Health Care Needs

In this Got Transition quarterly webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health.

A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.

Space is limited, so be sure to register in advance!