Category Archives: Tools & Resources for Families

Guide to Transition: New tool available

"Guide to Transition" tool is a paper wheel that displays transition goals and tasks by age and life domain
Our new Guide to Transition.

In recent years, the transition from pediatric to adult health care providers and systems has become a pressing issue for families of young people with special health care needs. Finding adult health care providers who are experienced and willing to accept emerging youth with complex needs can be difficult, and young adults are often unprepared to manage their health care and exercise increased independence. Advance preparation and intentional partnering with your health care providers can assist in a successful pediatric to adult health care transition.

Since 2011, with the support of The Colorado Health Foundation, Family Voices Colorado has been working on a pilot project to develop consistent tools and processes that support youth and young adults with special health care needs in the transition from pediatric to adult care. Our first tool is a Guide to Transition, now available in print as a wheel that turns to display the tasks for each age level in five different domains: Life Skills for Emerging Adults, Family Involvement, School, Career Planning, and Health/Health Coverage. You can also view the content of this tool by age or by life domain here on our website.

Request your hard copy of the Guide to Transition now! Just $5 per wheel (plus shipping), and bulk discounts are available for schools, health care providers, and partner agencies who want to distribute them to families who will find them helpful. So you can take a look at this great new tool, the first copy is free to established clients and partners when picked up from our office. You can see all the information in the guide through links at our Transitions page.

Learn more about Navigating Health Care Transitions, request information on the Guide to Transition, or contact Susan Hogarth, Family Navigator, at 303-577-0331 (direct) or 800-881-8272 x115, or email susanh (at) familyvoicesco.org.

The importance of advocacy: Call for stories

Family Voices National is partnering with Genetic Alliance and Parent to Parent USA (P2P) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition. To date, we have collected over 240 resources that will help users build leadership, communications, outreach, and advocacy skills. The tools will be part of an accessible online toolkit, with advocacy resources grouped by topic area.

We would like to include a personal story that demonstrates the importance of advocacy from an individual, family member, or caregiver in each of the toolkit topic areas.

For this project, ‘advocacy’ can include any example of a time when you or your family communicated a need, shared your story, or took steps to get something you wanted or needed.

Do you have a story to share about advocating in one of the following areas?

  • Youth Leadership
  • Transition to Adulthood
  • Insurance and Financial Assistance
  • Communicating about Your Health
  • Access to Health Care
  • Accessible Communities

To have your story included in the advocacy toolkit for individuals and families, please send a 1- to 3-paragraph summary to Sharon Romelczyk, Program Manager at sromelczyk@geneticalliance.org. Please only include information you wish to be shared, including any and all names or other identifying information.

If we include your story on the toolkit, we will contact you to let you know your story has been selected. Please let us know if you have any questions about the stories, how they will be used for the toolkit, or the toolkit in general. Thanks!

Family Leadership, Parent Support Providers, and more

Whether you are a parent or other family member who is interested in getting involved in advocacy, or a professional who supports families of children experiencing mental, emotional developmental, or behavioral challenges, you are an important link in the network of services and supports for children with special health care needs. Here are a few resources and training opportunities that came to our attention in the last week:

Using Social Media to Increase Family Leadership

Presenter: Maureen Casey

Sponsored by the National Consortium on Deaf-Blindness and National Family Association For Deaf-Blind.

This webinar will discuss different social media platforms and how families and their professional partners can harness the power of the internet to inform family leaders and increase advocacy and leadership. No registration is required.

To accommodate schedules, this webinar will be held twice, one during the day and one in the evening.
February 7th 11am PT, 12pm MT, 1pm CT, 2pm ET
February 10th 4pm PT, 5pm MT, 6pm CT, 7pm ET

This webinar will be closed captioned and recorded. Visit this page for details, including software requirements.

Parent Support Provider Certification: Scholarships available

Certified Parent Support Providers can brag about their credential! They meet the national standard of care for helping families who have children experiencing emotional, developmental, behavioral, substance use, or mental health issues. Now is a good time to apply for national certification. There are new scholarships from OptumHealth to cover $250 of the $350 cost of national certification as a Parent Support Provider. Go to www.certification.ffcmh.org/apply to learn more.

Bright Futures Family Network

Bright Futures for Families is a national initiative for families and communities to promote and improve the health and well-being of children of all ages. The January newsletter provides an introduction to the network’s member organizations.

 

As always, please call us at 303-733-3000 or 800-881-8272 with any questions.