*Note, this is not a BIAC event and all questions or concerns should be sent to Cate Adelman with CQL at 815-973-6776*
Looking back over the past year, Family Voices Colorado has a lot to be proud of:
We served more than 11,500 families and 4,500 professionals from June 2012 to May 2013, through a combination of direct assistance, trainings, print and electronic resources, and our Family-to-Family Health Information Network.
As a result of assistance/training provided by Family Voices Colorado, 91% of families report being better able to partner with health care providers in decision-making, 97% report that they are better able to find and/or learn about community services, and 94% report more confidence in getting necessary health care and services for their child with special needs.
Our team works hard to support families through the challenging tasks of securing services and resources for their children, and we celebrate when evaluations demonstrate that we are achieving our goals. You can read more about the context for our work in this Colorado Data Brief prepared by Family Voices National.
In the last year, we have also launched two new program areas: Life Coaching through Your Life. Better. 24/7., and Health Coverage guidance through the Connect for Health Colorado Assistance Network. Through these programs, we are supporting young adults with behavioral health challenges in developing skills and making choices that will enable them to thrive, and helping individuals and families understand their options under the new health insurance marketplace.
While our mission continues to focus on children and youth with special health care needs, we have identified a need for greater support to families and young people through the first part of adulthood. The transition from pediatric to adult health care systems can be challenging for any family, and those who live with disabilities or complex medical needs often encounter even greater obstacles to securing the services and support they need. Our Guide for Transition (also known as the “Transition Wheel”) was released to guide families through the tasks for each stage of adolescence approaching adulthood, and is now available in several other states through the national Family Voices network.
Finally, we expanded the hospital-based Family Navigator program from one staff person at Children’s Hospital Colorado to three staff, two of whom are at Children’s and one at Denver Health. We envision continued growth in this area as we demonstrate the tremendous benefits to children and families when they can receive referrals to community-based resources and services before leaving the hospital.
As we look forward to the months ahead, 2014 looks just as promising as 2013. For the past several months, we have been developing plans for a new project that will provide Personal (electronic) Health Records (PHRs) to support greater care coordination for low-income clients. These PHRs will be owned by the individual rather than by their health care provider. The planning stage has been funded by a grant from The Colorado Health Foundation, and we will soon apply for funds to support the full implementation of this vision.
Other areas of focus in the coming year include:
As we gear up for another exciting year, we hope you will join us for Hearts on Fire, which in 2014 will be a special Valentine’s Day happy hour fiesta. Be sure to register now to get the best price on tickets! Whatever your romantic status that day, we hope you’ll come and “wear your heart on your sleeve” for children and youth with special health care needs.
As always, we are grateful for your continued support and partnership with Family Voices Colorado in so many ways. If you need help navigating systems, accessing services, getting health coverage, or building capacity for system change, please give us a call!
On behalf of the staff of Family Voices Colorado, thank you to everyone who attended, donated to, or otherwise supported Hearts on Fire this past weekend. We are still tallying the donations, but we had a wonderful time dancing the night away, and we couldn’t have done it without all of you who wear your heart on your sleeve on a daily basis.
As we look to the future, we want to be sure we are making the best use possible of the resources available to us, and so we would like your input on the kinds of events we offer and how to have the greatest impact. Whether you attended Hearts on Fire 2013 or not, would you take our survey? It should take less than 5 minutes to complete; just click on the link below.
Thank you for sharing your thoughts. At Family Voices Colorado, we deeply value the voices of families, self-advocates, health care providers and other professionals as together we work to make Colorado a better place for children and youth with special health care needs.
