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Jake Hogarth at Adam's Camp

The Hogarth Family Story: Crippling out-of-pocket costs

Read the story of the Hogarth family, whose seven-year-old son, Jake, has Angelman Syndrome, a genetic disorder involving significant developmental delay, seizures, movement and balance problems and behavioral issues. Though Jake was covered by both parents’ private insurance plans, his family faced out-of-pocket expenses in the range of $1,000-$1,500 each month.

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