Guide to Transition: New tool available

"Guide to Transition" tool is a paper wheel that displays transition goals and tasks by age and life domain
Our new Guide to Transition.

In recent years, the transition from pediatric to adult health care providers and systems has become a pressing issue for families of young people with special health care needs. Finding adult health care providers who are experienced and willing to accept emerging youth with complex needs can be difficult, and young adults are often unprepared to manage their health care and exercise increased independence. Advance preparation and intentional partnering with your health care providers can assist in a successful pediatric to adult health care transition.

Since 2011, with the support of The Colorado Health Foundation, Family Voices Colorado has been working on a pilot project to develop consistent tools and processes that support youth and young adults with special health care needs in the transition from pediatric to adult care. Our first tool is a Guide to Transition, now available in print as a wheel that turns to display the tasks for each age level in five different domains: Life Skills for Emerging Adults, Family Involvement, School, Career Planning, and Health/Health Coverage. You can also view the content of this tool by age or by life domain here on our website.

Request your hard copy of the Guide to Transition now! Just $5 per wheel (plus shipping), and bulk discounts are available for schools, health care providers, and partner agencies who want to distribute them to families who will find them helpful. So you can take a look at this great new tool, the first copy is free to established clients and partners when picked up from our office. You can see all the information in the guide through links at our Transitions page.

Learn more about Navigating Health Care Transitions, request information on the Guide to Transition, or contact Susan Hogarth, Family Navigator, at 303-577-0331 (direct) or 800-881-8272 x115, or email susanh (at) familyvoicesco.org.

Family Voices Colorado selected for the Connect for Health Assistance Network!

We recently learned our application was approved to become an Assistance Site with Colorado’s Connect for Health Assistance Network! This means Family Voices Colorado will be one of 58 organizations providing in-person assistance to customers of the new health insurance marketplace starting in October.

Read the full press release from Connect for Health Colorado

Family Voices Colorado (FVC) has nearly 20 years’ experience helping consumers navigate both public and private health insurance  applications, eligibility, benefits, and appeals. Specializing in resources for families of children and youth with special health care needs, FVC will continue this focus while also being available to others needing help understanding their options in the new health insurance marketplace, Connect for Health Colorado.

As part of the Connect for Health Assistance Network, FVC will serve our community across Colorado, helping individuals, families and small employers better understand the new landscape of health insurance. At least two of our staff will serve as Certified Health Coverage Guides, providing unbiased assistance with considering health plan options, applying for insurance affordability programs and enrolling in health coverage. In addition, we will conduct outreach and public education about Connect for Health Colorado and the range of health coverage and financial assistance options.

View the complete list of Assistance Sites

We here at Family Voices Colorado are honored to be chosen for this role and excited to begin helping individuals and families better understand how health insurance works under the Affordable Care Act and Colorado’s own health care reform efforts!

ConnectforHealthLogo-centered2More about Connect for Health Colorado

Starting in October, Connect for Health Colorado will offer individuals, families and small employers a new online marketplace for health insurance and exclusive access to new up-front financial assistance, based on income, to reduce costs. Customers will shop through a website and get expert help in person and over the phone from a network of customer service professionals, including Customer Service Center Representatives, Health Coverage Guides and certified health insurance agents and brokers. The marketplace is a public, non-profit entity that was established by a 2011 state law. More information is available at www.ConnectforHealthCO.com.

The importance of advocacy: Call for stories

Family Voices National is partnering with Genetic Alliance and Parent to Parent USA (P2P) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition. To date, we have collected over 240 resources that will help users build leadership, communications, outreach, and advocacy skills. The tools will be part of an accessible online toolkit, with advocacy resources grouped by topic area.

We would like to include a personal story that demonstrates the importance of advocacy from an individual, family member, or caregiver in each of the toolkit topic areas.

For this project, ‘advocacy’ can include any example of a time when you or your family communicated a need, shared your story, or took steps to get something you wanted or needed.

Do you have a story to share about advocating in one of the following areas?

  • Youth Leadership
  • Transition to Adulthood
  • Insurance and Financial Assistance
  • Communicating about Your Health
  • Access to Health Care
  • Accessible Communities

To have your story included in the advocacy toolkit for individuals and families, please send a 1- to 3-paragraph summary to Sharon Romelczyk, Program Manager at sromelczyk@geneticalliance.org. Please only include information you wish to be shared, including any and all names or other identifying information.

If we include your story on the toolkit, we will contact you to let you know your story has been selected. Please let us know if you have any questions about the stories, how they will be used for the toolkit, or the toolkit in general. Thanks!

Making Colorado a better place for children and youth with special health care needs