Tag Archives: family-centered care

National Family Voices announces the Bright Futures Family Pocket Guide

Excerpts from National Family Voices press release; read the full story here.

This 164-page book was developed for families by families, in partnership with the American Academy of Pediatrics (AAP) and other professionals, and based on the AAP’s Bright Futures: Guidelines for the Health Supervision of Infants, Children, and Adolescents (3rd ed.). Bright Futures was recognized as the gold standard of pediatric care in the Affordable Care Act.

“The Bright Futures Family Pocket Guide puts highly relevant health promotion material in an easy to use, accessible format. The guide facilitates communication between families and providers and strengthens parent-provider relationships.”

Judith S Palfrey, MD
Mother of three children
Co-author, Bright Futures Editions 1 and 2
Former President, American Academy of Pediatrics
Former Executive Director of Michelle Obama’s “Let’s Move” Initiative

National Family Voices Executive Director Lynn Pedraza commented:

“Our work is all about families helping other families and professionals get the most useful information to best serve children with special health care needs and disabilities, and all children. The Pocket Guide is a great support in that effort: any family can use it to help their children be healthy and well at all stages of development. So, we hope to get this little book into the hands of as many families as possible to promote health and wellness for children everywhere. We have plans for translation, so stay tuned!”

Developed for families by families, the Pocket Guide provides families with:

  • Information and encouragement for the roles families play every day in the health and well-being of their children
  • Information about the importance of well child visits for all children, including children and youth with special health care needs
  • Encouragement to speak up to take active roles in their children’s care
  • Encouragement to form partnerships with other families and with professionals to improve policies, care, services, and support for all children and families
  • An overall framework for children’s good health and insight into all those who contribute to it
  • Current, comprehensive, succinct information about child development
  • Links to resources and further sources of information for children’s good health

Health care professionals as well as parents are finding the Pocket Guide to be a valuable reference:

“I believe this is the standard for how we need to be promoting health and wellness, as health professionals and as families. The Pocket Guide makes a family’s questions the #1 priority at each visit with a physician – and this is such a helpful approach for both the physician and the family. And it has the kind of resources at the back that physicians and families both tell me they need, very comprehensive, and right at their fingertips. All in all, it is fabulous little book with fantastic information.”

Dennis Kuo, MD
Father of two children, including one with juvenile arthritis
Pediatrician at Arkansas Children’s Hospital and Faculty at the University of Arkansas for Medical Sciences
Steering Committee Member, Arkansas Disability Coalition

For more information and to order copies of the Pocket Guide, go to http://bit.ly/BrightFuturesFamilyPocketGuideorders, or call Family Voices Colorado at 800-881-8272 and we will order copies for you.

What is a medical home?

Girl receiving injection
Free image courtesy of FreeDigitalPhotos.net

A medical home provides comprehensive, coordinated, culturally competent, family-centered, community based care. From the National Center for Medical Home Implementation:

A family-centered medical home is not a building, house, hospital, or home healthcare service, but rather an approach to providing comprehensive primary care.

In a family-centered medical home the pediatric care team works in partnership with a child and a child’s family to assure that all of the medical and non-medical needs of the patient are met.

At Family Voices Colorado, we believe that every child and youth deserves a medical home.  But it’s especially important for children with special health care needs, who require more care or services than typical kids. Practices certified as medical homes are committed to making sure patients and families are partners in decision-making, and they go the extra mile in helping families access, understand, and coordinate care, from surgery to occupational therapy; from oral health to mental health; from medication to augmentative communication devices.

Family Voices is committed to supporting practices that are or want to become certified as medical homes at every step of the process, from conducting the Medical Home Index and Family Surveys to Quality Improvement projects and ongoing support. We help providers better understand and navigate insurance or disability systems on behalf of patients and families. We also help families who are looking for providers certified as medical homes, especially those that accept Medicaid and CHP+.

If you would like to learn more about becoming or finding a medical home in your area, call us today at 303-733-3000 or 800-881-8272.