Tag Archives: special health care needs

Young adults discuss identity & health care transitions

The latest findings from the Data Resource Center for Child & Adolescent Health identify that 3 in 5 youth and children with special health care needs did not receive the services necessary to make appropriate transitions to adult health care, work, and independence. This is a critical juncture and  missed opportunity for preventing the further onset of adult chronic conditions.

Since spring 2011, Family Voices Colorado has been working with the national Got Transition? initiative, Children’s Hospital Colorado, and several other local health care providers to implement a pilot project exploring the resources and supports needed for more young people with special health care needs to experience a smooth transition from pediatric to adult health care.

Our Health Care Transitions Navigator is Susan Cassell, so if you have questions about the process or would like more information – whether as a parent or family member, youth or young adult, or as a health care provider – please contact her at 800-881-8272, ext. 115, or on her direct line at 303-577-0331. You may also want to explore some of the resources at Got Transition?, like their quarterly webinars and monthly radio episodes:

Got Transition? Quarterly Webinar
Wednesday, November 7, 12 – 1pm MST (2 – 3pm EST)
“I am more than a diagnosis!” – The Impact of Personal Identity on Health Care Transitions for Young Adults with Special Health Care Needs

In this Got Transition quarterly webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health.

A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.

Space is limited, so be sure to register in advance!

Halloween, Happy Hour, & other fall fun

October is one of the most beautiful months here in Colorado. The British novelist George Eliot once wrote, “Delicious autumn! My very soul is wedded to it, and if I were a bird I would fly about the earth seeking successive autumns.” We hope you are finding moments of beauty and joy in the midst of whatever stress and busy-ness may also fill your life.

martini glass on a platterAt Family Voices Colorado, we’re celebrating our recent office move to the Anschutz Medical Campus with a Fall Happy Hour at the Cedar Creek Pub, next Thursday, October 25, 5:00 – 7:00pm. Come meet the “new kids on campus,” and we’ll buy the first round!  RSVP to Chrystal at 303-733-3000, or on our Facebook event page.  Hope to see you there!

National Family Voices is holding a Fall Costume Contest for families of children and youth with special health care needs.  From their website:

Many cultures include children dressing up in costume at some time during the year as part of their tradition, and often these celebrations take place in the fall. This practice can be ceremonial or recreational – it is always exciting and often meaningful for both children and adults.

Family Voices’ costume contest will begin on Monday, October 15 and the last day for submission of entries will be Monday, November 5. Winners will be announced by Friday, November 9. A $100 Target gift card will be awarded to the winner in each of three age categories: 0 – 7 years old, 8 – 14 years old, 15 – 21 years old. To enter go to http://www.surveymonkey.com/s/FVcostumecontest.

Painted wood stump Jack-o-lanternFinally, if your child’s special needs include sensory challenges, you might find these tips on navigating Halloween helpful. Or, if you’re looking for more costume ideas, especially incorporating a wheelchair or other equipment, try this Huffington Post article or these suggestions from the Christopher Reeve Foundation.

Happy Fall!