Looking back over the past year, Family Voices Colorado has a lot to be proud of – read on for some highlights of our achievements and impact in 2013, and a preview of what 2014 may bring.
Since 2011, with the support of The Colorado Health Foundation, Family Voices Colorado has been working on a pilot project to develop consistent tools and processes that support youth and young adults with special health care needs in the transition from pediatric to adult care. Our first tool is a Guide to Transition, now available.
Family Voices National is partnering with Genetic Alliance and Parent to Parent USA (P2P) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others. We are developing an online toolkit and would like to include a personal story that demonstrates the importance of advocacy in each of several topic areas.