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Family Voices Colorado is a grassroots organization run by parents of children with special healthcare needs. The support you receive is from someone who understands the many challenges of having a child with special health care needs in their life.

Every day we give parents the information and knowledge they need to navigate complex health care systems in order to get things like wheelchairs, oxygen, or a surgery for their children. With our help, parents are able to be the heroes their children are counting on. Parents also receive the information about other systems they should access based on their child’s diagnosis and needs.

Family Voices CO works at the policy level to ensure children with special health care needs have a voice. We listen to the challenges from the family perspective, tracking trends, in order to create systems change. We monitor policy activities to ensure families receive the services they need.

Colorado’s health care systems – both public and private –are difficult for families to navigate. Family Voices CO understands both the private and public health systems. They also understand how the systems can work together.

“Most of all, [dealing with these financial issues], take[s] us away from doing the best we can for our daughter, so in the end, it is Kelsey who has to bear the burden.” – Kelsey’s parents

Through working with Family Voices CO, parents are supported and empowered, resulting in stronger families and an increased ability to advocate effectively on behalf of their children.

Families of children with special healthcare needs often access multiple systems. Consequently, they experience the system barriers more quickly. Family Voices CO collaborates with the systems working to reduce the barriers through policy work and systems change. Family Voices CO promotes improved decision-making, better outcomes and higher quality services for all.

Family Voices Advisory Board Members:

Eileen Forlenza, Parent  •  9217 Sugarstone Cir., Littleton 80130

Wes Skiles •  1776 Lincoln St., #1100, Denver 80203

Jim Brennan, Parent •  3553 S. Waco Wy., Aurora 80013

Lance Wheeland •  1673 S. Trenton St., Denver 80231

Todd Blakely, Parent •  1560 Broadway #1200, Denver 80202

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